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Posts Tagged ‘U.S. Patent Wars for Gene-Editing Processes involving at least three famous research institutes and/or universities (East Coast/West Coast USA)

The Broad Institute (MIT, Harvard, TBF*, 2008) and Stanley Family Foundation (see MBI, Inc.)-funded Center for Psychiatric Research (“schizophrenic, bi-polar”) Testing and Treatment Advocacy (“TAC”) and Gene-Editing (CRISPR-Cas9) USPTO Patent Wars with UCBerkeley et al. (written 6/15/17, posted 7/23/2017)

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Post name and shortlink: The Broad Institute (MIT, Harvard, TBF*, 2008) and Stanley Family Foundation (see MBI, Inc.)-funded Center for Psychiatric Research (“schizophrenic, bi-polar”) Testing and Treatment Advocacy (“TAC”) and Gene-Editing (CRISPR-Cas9) USPTO Patent Wars with UCBerkeley et al. (written 6/15/17, posted 7/23/2017). (case-sensitive shortlink ends “=71z”)…


This post had a preview, published in June, with similar, multi-component title reflecting how many components there are to these situations (and, institutes):

More info on/from the “Speaking of Projects and Nonprofits” post:

That post also looked at a website “PgEd.org” supposedly helping educate readers on basic concepts (genotype v. phenotype) although on closer look, doing a good job of soliciting for participants and (if I recall it right) PR for the cause.  It’s located at Harvard Medical School Dept. of Genetics (i.e., NOT a separate 501©3?  Only a thorough search would say for sure), but acknowledges a recent “generous contribution” from Professor Jennifer Doudna.  On closer examination of the PgEd.org page (in that post) I showed how it’s more promotion than education (poor definitions, circular references, in between plugs for participation in getting personally genome-sequenced…)

PgED links to GETed conferences (started in 2010?) which go global, and are hosted by a 501©3 “PersonalGenome.org” started only in 2005 (at Harvard Med School).  Again, they want volunteers to give their personal data and for it to be shared globally and across institutions.  Meanwhile, The Broad Institute wants those CRISPR patents… The PersonalGenomes.org simplified website, to its credit, does post under “Donate” its own street address, IRS status and even EIN# 26-2973607 but, shamefully (it’s been now a dozen years!) not one Form 990 or audited financial statement.

There is no “financials” page. Having browsed their very few Form 990s (2008 first –> current) and seen employees ranging from “0” to “4” and a board of only 6, with minimal contributions until a single $1,000,000 grant given 12/31/2011 (and afterwards, times of running in the red nevertheless) I can see why they may not be encouraging a closer look. Then in 2015, organization changed its name to “Open Humans Foundation.”  This website DOES post prior Forms990 (and reference the namechange). Another surprise: its legal domicile is North Carolina, not MA.


(NC filing shows timing of the name change).

 

Only registered for MA in 2012…(per state-level websites recording corporation names in both states.

Note:  These typically come with disclaimers, but a search will show that on-line as of today (7/26/17 by now).  Also interesting — in neither state were annual reports showing as filed.  First, it didn’t file them (at least visible on-line, see “disclaimer” comment) for several years in NC, then after 2012, it didn’t file for four more years, until 2016.  Guess if there’s enough professionals, MDs, PhDs, or important people on the organizations, they don’t have to obey normal laws regarding nonprofit registration, and corporate annual reports at the state level??

Same EIN#26-2973607 Diff’t Name. (Open Humans Foundation in Boston, formerly “PersonalGenomes.org”). The indication “MA” as legal domicile (Header Info, bottom-right) doesn’t match Business Entity records in MA or NC, which say it’s NC…

Same EIN#26-2973607 Orig. Name, Form 990EZ for 2008; this form doesn’t prompt for legal domicile…

 

This section and info. was added post-publication on 7/26/2017 (along with the Two Tax Returns excerpts and “PgEd.org” images extending below this section’s border) and will be discussed separately, soon. I’m just bringing it up here to “prime the pump” for a future post.

PgEd.org home banner (a Project of Harvard Med. School Dept. of Genetics) says it got a generous contribution from UCBerkeley’s (See “Doudna Lab”) Professor Doudna (Harvard + MIT’s and TBF’s “The Broad Institute” meanwhile warring with UCB (and Prof. Doudna) over CRISPR patents). No caption, no date on the pix…how “educational.”

PgEd.org home banner (7/2017). Emphasis on personal genetics + sequencing.

PgEd.org home banner (a Project of Harvard MedSchool Dept. of Genetics

PgED: Alfred P. Sloan Fndtn, Sundance Festival into it too…(No caption, no date, on the photo. How “educational”…)


(MIT, Harvard, TBF,* 2008)” refers to the leadership (per its inc. papers available at Commonwealth of Massachusetts business entity search site). “2008” refers not to “TBF” but to The Broad Institute’s incorporation date. I mention this because records show that just before 2008, TBF changed its accounts (EIN# and legal entity registered with the state, as I recall, as next paragraph mentions.  I wonder if the two planned events were somehow related.

This also affected or related to filings regarding (but not the topic of this post) two other, much smaller, Broad-funded nonprofits active in training individuals urban school leadership with a view towards its reform. That seems a lot of shifting identities shortly before the major recession IN 2008. (Those nonprofits featured training of school leadership.  See previous posts.)

*TBF = “The Broad Foundation,” which as “it” changed EIN#s ca. 2006-07, but specially IRS-ruled “not a termination,” fiscally (or, at minimum two different entities associated with/filing under two different EIN#s), I guess one might say it was a paranormal succession of two-into-one foundations, with some name-shifting between which was the d/b/a of the other.  (I posted on it earlier, some images here for reminders). Not the main point in this post, except for the ability to pull off some phenomenal societal shifts, when there’s enough financial and famous philanthropic names weight to be thrown around, with friends and associates, towards causes they believe in.


Like many philanthropists, Eli and Edythe Broad are active in many areas — the arts, education, architecture, development, and for purposes of this post, scientific research with a focus on the biomedical, genetic, psychiatric and the Human Genome with a view towards applications.

It’s a fascinating field, it’s a mark of this century (and the last part of the 20th), and even just the technology facilitating study or experimentation in it, is a whole other story.  If I weren’t doing this blog, I’d be interested in that field in general and as it intersects with our family line which seems to have a scientific streak (as well as manipulative, bullying streak) somehow “bred into” it.  But in blogging it here, my focus after posting some of the fairly recent news, is still on reconstructing the “genealogy” and “DNA” of its major philanthropic and university (collaborating) investors/funders and funding families.

Blogger comments re: timing of this post (see title).  Other than this update, and adding information on one more institute (Whitehead Institute for Biomedical Research — at MIT, but its own EIN# since the 1980s, say its tax returns) and that is a short post, for a change!

I have been working and focusing hard for more than a month to update the “Do You Know Your…” theme in three major parts, and ancillary posts.  These are major networked nonprofits, each with its own tax returns — many parts, and a patterns developing over time within them, each with its websites, and all with their sponsors, and interrelationships.

#4 from USTreasury OCC’s BankDerivatives Rept March08

I needed a mental break and “time-out” for a bit from that subject matter and clicking through the same websites over and over to dredge out the pieces of the puzzle.  I enjoyed the detail (especially on the state CAFR and US Treasury reports), but the drudgery of poorly-organized, repetitive posts and finding more and more evidence of “skullduggery” in the nonprofit sector with not one, but several different organizations…  It’s not without its rewards (like increased understanding), but while study and posting on a single topic, I am immersed in that subject matter, sometimes to the point of dreaming about posting on it, or discovering key points about them.  

So having accomplished several legs of this project I decided to return to the previous topic here for a while, around themes and organizations listed in post title.   It’s also a fascinating one.  The “heavy lifting” on this post was already done.  I’m not re-viewing the content in detail (I did re-read it), but am adding some on the Whitehead Institute for Biomedical Research organization mentioned on the Wikipedia which I believe puts the development of the Broad Institute in some chronological perspective.
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Written by Let's Get Honest

July 23, 2017 at 7:51 pm

Posted in 1996 TANF PRWORA (cat. added 11/2011)

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