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Who? (Besides Harvard, MIT and Other Boston-area Institutes) is Funding and Promoting/Soliciting for Personal Genomics (volunteer your personal, identifiable, genetic code for the PGP, a global database to be shared internationally) — GET Research (fine-tuning and equipping the Nature vs. Nurture debate) as Essential for Global Public Health? (publ. 7/31/17)

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Who? (besides Harvard, MIT and other Boston-based Institutes) is Funding and Promoting/Soliciting for Personal Genomics (volunteer your personal, identifiable, genetic code for a global database to be shared internationally) — GET Research (fine-tuning and equipping the Nature vs. Nurture debate) as Essential for Global Public Health Issue? (title’s short-link ends “-7m3”; published 7/31/2017)

[ “MIT” added to the title at some point, but not the internal record of the title.  With MIT’s involvement with both the Broad Institute (named on its corporate papers in MA) and the Whitehead Institute (which calls itself independent, but uses “MIT” in its website URL(!)), it’s “not just Harvard.”


Well, just the other day I learned more about one of the terms in the post title in the typical way — while updating one post, referring to one website in passing, I took a second, closer look at other parts of the website (“conferences” link), which revealed both the GET conferences and the name of a nonprofit sponsoring them. That’s how “GET” and “PersonalGenomes.org” came up to my attention.

So, in this post expect to hear about:

~|~ PgEd.org ~|~ PersonalGenomes.org/Open Humans Foundation ~|~  the GET conferences ~|~volunteer your personal genetics” solicitation as a recurring theme ~|~ (leaving aside the Broad Institute for a while) more on the Whitehead Institute for Biomedical Research (“Whitehead Institute”) ~|~ and Treatment Advocacy Center (“TAC”) associated with the Stanley Medical Research Institute (“SMRI”) ~|~ Which of the above have (as it applies) boards of director personnel, funders and/or it seems, well-coordinated purposes in common.

~|~ And several images + a table tax returns, because of their support of the Human (and “Personal”) Genome Project, the Coriell Institute for Medical Research (formed 1953, it says, in Camden, NJ). They provide the Biobank, cell lines (and more), funded by, currently it says, seven NIH awards.

I talk about and show some of their financials, and how at least one them went to special efforts NOT to show them, at least on the main website while promoting its cause, scientists, research, and outreach (and soliciting more support, preferably $10K at a time or more). I took a short enough (hopefully) look at the source of Whitehead wealth in the sale of the clinical diagnosis instrument company (“Technicon”) to Revlon in 1980, and what happened to Revlon not long after — because it’s interesting, and relevant.


When and Where? Of these, PersonalGenomes.org/Open Humans Foundation and The Whitehead Institute (“WI.MIT.edu) are in the Boston area (although one of their legal domiciles isn’t in MA but NC) and PgEd.org web page gives contact address at Harvard Medical School Dept. of Genetics (PgEd.org doesn’t appear to be a separate entity), SMRI is in Bethesda MD, TAC which SMRI supports, is in Arlington, Virginia, and the Coriell Institute in NJ (website + tax returns don’t match).

The oldest entity in the list (until I added Coriell to it!) seems to be the Whitehead Institute, (<= EIN#061043412, that’s a link to an older Form 990, which I’ll show below, at Nine Cambridge Center, Cambridge MA)(website says 455 Main now) started in, says its Form 990, 1982.  SMRI (per tax return) started in only 2001, and, which is interesting, the TAC, three years earlier, 1998.  Coriell started in the 1950s..

In this post, you will also hear about two more entities who have worked side-by-side for decades to shape government-sponsored research in particularly cancer (smoking cessation), heart disease, biomedical research into genetics, and to push for more and more NIH funding:  

~|~ Research! America (est. 1989), and ~|~ the Albert & Mary Lasker Foundation (it seems 1974)

Briefly, how they came up.

When the Whitehead Institute’s famous founder is looked at, and through basic Google search on my part (I didn’t know who he was…), this also brings up his participation/founding of Research! America (inc. 1989, a VA-based entity with a D.C. legal domicile — and apparently some legislators (or at least “Hon.’s”) on its board over time)*, with its push for doubling NIH funding for biomedical research in five years, and in general PR for BioMedical Research (incl. on stem cells) as a public and global health benefit.

I put that discussion (several annotated images from its timeline) towards the bottom of the post, but it will pull together, I believe other parts of the narrative in a timeline. The website gives a timeline of events, and shows how many other foundations (incl. Bill & Melinda Gates, Robert Wood Johnson, and others, and not a few Congressmen, were involved, and spinoff organizations (at least two 501©4s) in pulling this off.  Where I found this information was on a multi-page, all-text, highly linked (although some have expired) and detailed tracking of networked families, companies and foundations, especially related to the anti-smoking campaign (American Cancer Society), America Heart Association, and pushing money towards biomedical research.  I spent hours (in fact, a full work day just reading, not writing) looking at this after the first exposure nearly a week ago, when I looked at certain parts of it.

It challenges the paradigm — the public promoted website purposes– but in the process uses some volatile and at times offensive language (bilge, shucksters, Nazi fascism of the health system, pseudoscience and more), BUT it also resonates and as an interpretation makes sense with information outside the website, and my strong gut instinct that some things are drastically wrong with the overall picture.  It definitely got me looking further, and more understanding on previously covered topics, as well as on new ones.  I have a title (short version, long version) and a start on that write-up (post in draft status Now Published), at:

 

Much as I enjoy looking at the detailed and colorful photos of cells, or hearing about the discoveries in scientific fields, including genetics…and in part because of the prominence of the Whitehead Institute (and with it, Edwin C. Whitehead, his surviving son John, and other siblings till on the institute’s board of directors (Susan, Peter), I still feel responsible to bring up alternate views of both the above organizations, and their founders’ (and friends’) overall purposes, and how they achieved them.

* (by recall from review of the Research! America returns)

  • the Hon. Paul G. Rogers (d. 2008)
  • the Hon. John Edwards Porter
  • the Hon. Louis H. Sullivan
  • not to mention also former US Surgeon-General, C. Everett Koop.

About Whitehead Institute (pausing to note its website is at MIT):

Whitehead Institute is based at MIT,** but as a separate nonprofit; famous originally for its major contribution to the Human Genome Project.

**Notice MIT’s “About” page (READ!!) mentions the Human Genome project and CRISPR, also its summary of current initiatives and projects, and estimate of $1.9 trillion annual revenue generated by its alumni (over 130,000 — MIT started in 1861 –). That was a 2014 estimate. )

Current research and education areas include digital learning; nanotechnology; sustainable energy, the environment, climate adaptation, and global water and food security; Big Data, cybersecurity, robotics, and artificial intelligence; human health, including cancer, HIV, autism, Alzheimer’s, and dyslexia; biological engineering and CRISPR technology; poverty alleviation; advanced manufacturing; and innovation and entrepreneurship.)

So Whitehead Institute’s location within MIT as a free-standing 501©3 school is a very big deal!)

Another on-line source referencing Mr. Whitehead’s work mentioned the Albert & Mary Lasker Foundation (est, 1974?) as involved in some of the same politics and public health promotions (although around a different cause), so within the past few days, I was also looking at its website, board of directors, and you betcha, tax returns.


BLOGGING CONTEXT/TIMELINE ON THESE TOPICS:

Over time and two related (but not consecutive) FamilyCourtMatters.org posts I have shown several of these institutes’ (entities’) tax returns in table format, so people might see:  Total Assets, State, and (if they clicked through) on page 1 of any individual return, (for Form 990 filers, and only FY2008ff for them — Form 990PFs for private foundations don’t show this, or Form 990EZs…) a year of incorporation and related website if identified on the Form990’s header info.), and quickly (from page 1 summary) whether its main revenues were contributions, program services revenues, or something else (such as investment-related income, whether from dividends or sale of assets at a profit).  In general this locates any organization in time, space, characteristics and size, activities as told the IRS (not the public) including whether it bothered to follow IRS form instructions.  It also reveals if looked at further, or earlier returns are checked out, subcontractors, if there are grantees, related organizations, and where they are holding their assets.

The two related posts (I’ll link to these again further below, in the same format):


These are my most closely related recent posts: #1 posted 7/23 and updated 7/24-76:


With similar, multi-component title reflecting how many components (institutes, websites, elements) there are to these situations, although two university names continue to come into play: Harvard, and UCBerkeley,  #2, posted 6/18/2017:

Related post name and shortlink Speaking of Projects and Nonprofits Funded by The Broad Foundation…. How about The Broad Institute (and its role in waging Patent Wars over CRISPR (Gene Perturbation, RNA/DNA cutting-edge research) with UCBerkeley?)(case-sensitive short-link ending “-720” that “0” is a zero, not O as in “Ohio.”).  (Published 6/18/2017)

…..And of course, MIT (Massachusetts Institute of Technology)

Whitehead Institute

Just one of its tax returns gives several points of reference you won’t find on “Wikipedia,” or most likely analyzed on its own website. Patience, please! with a bit of tax return show-and-tell. These “factoids” shown from Forms 990 provide a series of good mental “memory tags” helpful in putting time, size and place on any organization points of comparison (like an “LCD,” lowest common denominator) relative to other institutes/nonprofits and its position relative to public funds.

  • Without objective, basic “quantifiable” points of comparison outside the self-descriptions on the websites, or personal knowledge (eyewitness) experiential information of the programming or professors, directors (etc.) of ALL members of the entities working the field, how can they be understood, outside of hearsay and PR? They are not “the whole story,” but they give all other stories a basic structure.  “Read my lips!  Read the 990s
  • WITH such points of comparison, there is at least a basis for conversation or discussions with people who may not share common experiences, or outside one’s professional niche/s or “expertise.” It’s a descriptivevital language (including vocabulary) for transmission of meaning across time and distance. It helps with categorization and understanding of reality — including the reality of public economic support of private infrastructure.  This language is apparently NOT meant for common understanding across the US population.  Instead, we are often given promotions and propaganda to justify public policy and the costs. (This point added post-publication during a review).
  • What’s in common with other for-profit industries working with the organizations towards a global or public health goal? For assembling any concept of who’s been doing what, and to a degree, how (financially) and under what cause (which any public (vs. private foundation) 501©3 must state as its program purpose, that is, reason for existing in the first place), getting to the tax returns before the website rhetoric cannot hurt.
  • One thing I also tend to notice on any “for the public good” organization website is how forthcoming is it about its own financials (especially the 990s) as opposed to advertising “G&S” (Goods & Services) and soliciting donations or participants, i.e., selling.

The Whitehead Institute hasn’t posted an annual report since FY2014 (I write in nearly August 2017) and not one Form 990 is shown.  Getting even to the Annual Reports is a reach, and there are no posted audited financial statements anywhere on the site, that I can see.   Look at the top and bottom of the home page; between this like a newspaper layout of awards or recognitions for its famous people involved or their accomplishments.  I have no problem with that — BUT not when financials are omitted, or even a reference to the EIN#.  Many organizations will post this — why doesn’t this one?

To show this, I’ve annotated the next two images from the top and the bottom of the main page, one from the donor form, and a single image from their magazine which “special” donors (who give from $2.5 – $10K) get.

The website has beautiful, colorful and intriguing images from their research, and plenty of their people also.  My annotations on the image obscure much of that.  If you want to see the vivid pictures without all my notations, go to the main website which is easy to remember:  WI.MIT.edu!

To ensure I wasn’t making a false claim either here, or on the annotations about the “MIA” financials, I went also again to the “Support” Page (another place sometimes an EIN# may be mentioned).  Of course I have their EIN# already, but the point here is, does the W.I. think it’s worth a token gesture or not?  That answer is:  “Not!”  Even a link labeled something like “Financials 2014” under that Support menu looks like a single page (fine print) from the Annual Report, with two piecharts and a list of personnel.  That is not the only place some of the labeling and statements are vague and misleading.

A good question might be:  If this is how the institute handles communications and solicitations — i.e., misleading statements and labels, missing information which the public deserves to know — how reliable is their scientific statements and information? (I have the same issue with more than one organization in the “~|~” -marked list, above). Of course, I have no scientific expertise to judge, or reason to suspect that the science behind this institute is less then stellar.  BUT, my other comments stand.  Its failure to divulge financials I believe is odd and inappropriate. Having looked at the tax returns already, I suspect that one motive might be not wishing the public who might donate more to comprehend just how much public financing is already involved. Its failure to provide CURRENT annual reports as well (at least) is also disrespectful, and the organizational history narratives, spread over many pages, are designed not to go very far in depth, and are notably absent backup links.  

I noticed this tone and quality on the website from the start; it bothered me knowing what level of diligence and detail must occur for the level of science (and technology) taking place both here, and at the prestigious MIT.  I think it is disrespectful overall, and smacks of arrogance and condescension — while I am, as who wouldn’t be, still interested in the discoveries and descriptions of those discoveries in the field.

This is NOT a valid format OR substance for presentation of significant financial information. Nor is any offer made how to contact the organization and get these.  Apparently, we’re not supposed to think about these things, but what a privilege it is to be involved, and support it out of pocket. The impact of this will be seen when (a) you look at the Whitehead Institute’s tax return (one provided below), and (b) when you read about Research! America’s push for doubling that NIH funding within five years (said to have been achieved by 2003). It’s entirely fair, when being solicited in conditions like this, and honest, for any U.S. citizen to say, “I already gave at the office!” because we did!

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July 31, 2017 at 9:01 pm

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The Broad Institute (MIT, Harvard, TBF*, 2008) and Stanley Family Foundation (see MBI, Inc.)-funded Center for Psychiatric Research (“schizophrenic, bi-polar”) Testing and Treatment Advocacy (“TAC”) and Gene-Editing (CRISPR-Cas9) USPTO Patent Wars with UCBerkeley et al. (written 6/15/17, posted 7/23/2017)

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Post name and shortlink: The Broad Institute (MIT, Harvard, TBF*, 2008) and Stanley Family Foundation (see MBI, Inc.)-funded Center for Psychiatric Research (“schizophrenic, bi-polar”) Testing and Treatment Advocacy (“TAC”) and Gene-Editing (CRISPR-Cas9) USPTO Patent Wars with UCBerkeley et al. (written 6/15/17, posted 7/23/2017). (case-sensitive shortlink ends “=71z”)…


This post had a preview, published in June, with similar, multi-component title reflecting how many components there are to these situations (and, institutes):

More info on/from the “Speaking of Projects and Nonprofits” post:

That post also looked at a website “PgEd.org” supposedly helping educate readers on basic concepts (genotype v. phenotype) although on closer look, doing a good job of soliciting for participants and (if I recall it right) PR for the cause.  It’s located at Harvard Medical School Dept. of Genetics (i.e., NOT a separate 501©3?  Only a thorough search would say for sure), but acknowledges a recent “generous contribution” from Professor Jennifer Doudna.  On closer examination of the PgEd.org page (in that post) I showed how it’s more promotion than education (poor definitions, circular references, in between plugs for participation in getting personally genome-sequenced…)

PgED links to GETed conferences (started in 2010?) which go global, and are hosted by a 501©3 “PersonalGenome.org” started only in 2005 (at Harvard Med School).  Again, they want volunteers to give their personal data and for it to be shared globally and across institutions.  Meanwhile, The Broad Institute wants those CRISPR patents… The PersonalGenomes.org simplified website, to its credit, does post under “Donate” its own street address, IRS status and even EIN# 26-2973607 but, shamefully (it’s been now a dozen years!) not one Form 990 or audited financial statement.

There is no “financials” page. Having browsed their very few Form 990s (2008 first –> current) and seen employees ranging from “0” to “4” and a board of only 6, with minimal contributions until a single $1,000,000 grant given 12/31/2011 (and afterwards, times of running in the red nevertheless) I can see why they may not be encouraging a closer look. Then in 2015, organization changed its name to “Open Humans Foundation.”  This website DOES post prior Forms990 (and reference the namechange). Another surprise: its legal domicile is North Carolina, not MA.


(NC filing shows timing of the name change).

 

Only registered for MA in 2012…(per state-level websites recording corporation names in both states.

Note:  These typically come with disclaimers, but a search will show that on-line as of today (7/26/17 by now).  Also interesting — in neither state were annual reports showing as filed.  First, it didn’t file them (at least visible on-line, see “disclaimer” comment) for several years in NC, then after 2012, it didn’t file for four more years, until 2016.  Guess if there’s enough professionals, MDs, PhDs, or important people on the organizations, they don’t have to obey normal laws regarding nonprofit registration, and corporate annual reports at the state level??

Same EIN#26-2973607 Diff’t Name. (Open Humans Foundation in Boston, formerly “PersonalGenomes.org”). The indication “MA” as legal domicile (Header Info, bottom-right) doesn’t match Business Entity records in MA or NC, which say it’s NC…

Same EIN#26-2973607 Orig. Name, Form 990EZ for 2008; this form doesn’t prompt for legal domicile…

 

This section and info. was added post-publication on 7/26/2017 (along with the Two Tax Returns excerpts and “PgEd.org” images extending below this section’s border) and will be discussed separately, soon. I’m just bringing it up here to “prime the pump” for a future post.

PgEd.org home banner (a Project of Harvard Med. School Dept. of Genetics) says it got a generous contribution from UCBerkeley’s (See “Doudna Lab”) Professor Doudna (Harvard + MIT’s and TBF’s “The Broad Institute” meanwhile warring with UCB (and Prof. Doudna) over CRISPR patents). No caption, no date on the pix…how “educational.”

PgEd.org home banner (7/2017). Emphasis on personal genetics + sequencing.

PgEd.org home banner (a Project of Harvard MedSchool Dept. of Genetics

PgED: Alfred P. Sloan Fndtn, Sundance Festival into it too…(No caption, no date, on the photo. How “educational”…)


(MIT, Harvard, TBF,* 2008)” refers to the leadership (per its inc. papers available at Commonwealth of Massachusetts business entity search site). “2008” refers not to “TBF” but to The Broad Institute’s incorporation date. I mention this because records show that just before 2008, TBF changed its accounts (EIN# and legal entity registered with the state, as I recall, as next paragraph mentions.  I wonder if the two planned events were somehow related.

This also affected or related to filings regarding (but not the topic of this post) two other, much smaller, Broad-funded nonprofits active in training individuals urban school leadership with a view towards its reform. That seems a lot of shifting identities shortly before the major recession IN 2008. (Those nonprofits featured training of school leadership.  See previous posts.)

*TBF = “The Broad Foundation,” which as “it” changed EIN#s ca. 2006-07, but specially IRS-ruled “not a termination,” fiscally (or, at minimum two different entities associated with/filing under two different EIN#s), I guess one might say it was a paranormal succession of two-into-one foundations, with some name-shifting between which was the d/b/a of the other.  (I posted on it earlier, some images here for reminders). Not the main point in this post, except for the ability to pull off some phenomenal societal shifts, when there’s enough financial and famous philanthropic names weight to be thrown around, with friends and associates, towards causes they believe in.


Like many philanthropists, Eli and Edythe Broad are active in many areas — the arts, education, architecture, development, and for purposes of this post, scientific research with a focus on the biomedical, genetic, psychiatric and the Human Genome with a view towards applications.

It’s a fascinating field, it’s a mark of this century (and the last part of the 20th), and even just the technology facilitating study or experimentation in it, is a whole other story.  If I weren’t doing this blog, I’d be interested in that field in general and as it intersects with our family line which seems to have a scientific streak (as well as manipulative, bullying streak) somehow “bred into” it.  But in blogging it here, my focus after posting some of the fairly recent news, is still on reconstructing the “genealogy” and “DNA” of its major philanthropic and university (collaborating) investors/funders and funding families.

Blogger comments re: timing of this post (see title).  Other than this update, and adding information on one more institute (Whitehead Institute for Biomedical Research — at MIT, but its own EIN# since the 1980s, say its tax returns) and that is a short post, for a change!

I have been working and focusing hard for more than a month to update the “Do You Know Your…” theme in three major parts, and ancillary posts.  These are major networked nonprofits, each with its own tax returns — many parts, and a patterns developing over time within them, each with its websites, and all with their sponsors, and interrelationships.

#4 from USTreasury OCC’s BankDerivatives Rept March08

I needed a mental break and “time-out” for a bit from that subject matter and clicking through the same websites over and over to dredge out the pieces of the puzzle.  I enjoyed the detail (especially on the state CAFR and US Treasury reports), but the drudgery of poorly-organized, repetitive posts and finding more and more evidence of “skullduggery” in the nonprofit sector with not one, but several different organizations…  It’s not without its rewards (like increased understanding), but while study and posting on a single topic, I am immersed in that subject matter, sometimes to the point of dreaming about posting on it, or discovering key points about them.  

So having accomplished several legs of this project I decided to return to the previous topic here for a while, around themes and organizations listed in post title.   It’s also a fascinating one.  The “heavy lifting” on this post was already done.  I’m not re-viewing the content in detail (I did re-read it), but am adding some on the Whitehead Institute for Biomedical Research organization mentioned on the Wikipedia which I believe puts the development of the Broad Institute in some chronological perspective.
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Written by Let's Get Honest

July 23, 2017 at 7:51 pm

Posted in 1996 TANF PRWORA (cat. added 11/2011)

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